Features

Personal data

When we click “OK” or “Accept” while browsing the internet or downloading a mobile app, we must be aware that we are providing someone with sensitive information about ourselves that we have the right to control

Privacy and protection of our personal data is governed by the European General Data Protection Regulation
“No data can be collected for the purpose of advertising in general, the type of advertising must be specified”
There are some situations in which personal data can be processed without the explicit consent of the individual involved

Some of the clear­est ex­am­ples of per­sonal data would be basic in­for­ma­tion such as your name, sur­name, ad­dress, tele­phone num­ber or bank de­tails. How­ever, the term per­sonal data ac­tu­ally cov­ers much more than that. “Call­ing a cer­tain per­son at a cer­tain time also con­sti­tutes per­sonal data, as does your ge­olo­ca­tion. This is im­por­tant in­for­ma­tion from which other is­sues can be in­ferred, for ex­am­ple, vis­it­ing a place where your ide­ol­ogy or re­li­gious be­liefs can be de­duced,” says Mònica Vi­lasau, pro­fes­sor of law and po­lit­i­cal sci­ence at the UOC open uni­ver­sity and an ex­pert in the pro­tec­tion of pri­vacy and per­sonal data.

Pri­vacy and pro­tec­tion of our per­sonal data is gov­erned by a Eu­ro­pean reg­u­la­tion from 2016, the Gen­eral Data Pro­tec­tion Reg­u­la­tion or GDPR, which came into full force in 2018, and which pro­vides the foun­da­tion for a much wider set of rules. “The reg­u­la­tions are very com­plex and it de­pends on the spe­cific data being as­sessed. It’s not the same to process data about your home as it is to process health data, which is con­sid­ered more sen­si­tive, or elec­tronic com­mu­ni­ca­tions data, which have their own spe­cific reg­u­la­tions,” adds Vi­lasau. The dig­i­tal trail each of us leaves due to our use of new tech­nol­ogy is huge, and so the Eu­ro­pean reg­u­la­tion es­tab­lishes a se­ries of prin­ci­ples that must be re­spected with the aim of pro­tect­ing all this data that is being con­tin­u­ously gen­er­ated.

Spe­cific lim­its

One of these prin­ci­ples is pur­pose lim­i­ta­tion. This is a sit­u­a­tion that when per­sonal in­for­ma­tion is col­lected and processed, it must be for a spe­cific and lim­ited rea­son. “No data can be col­lected just for the pur­pose of ad­ver­tis­ing in gen­eral, what type of ad­ver­tis­ing will be car­ried out must be spec­i­fied. The data must also be treated in a law­ful, trans­par­ent, fair and ap­pro­pri­ate man­ner,” says Vi­lasau, who also stresses that only the data that are strictly nec­es­sary for the spe­cific stated pur­pose can be col­lected.

In ad­di­tion, the reg­u­la­tion states that the col­lec­tion and treat­ment of the per­sonal data must be ac­cu­rate and must have a spe­cific du­ra­tion, for ex­am­ple, just for the length of a school year or dur­ing a spe­cific ad­ver­tis­ing cam­paign. An­other basic prin­ci­ple is in­tegrity and con­fi­den­tial­ity, in other words en­sur­ing that per­sonal data is se­cure, prop­erly stored, and never leaked. And this not only ap­plies to dig­i­tal se­cu­rity. Just last year, the Span­ish Data Pro­tec­tion Agency sanc­tioned – with a se­ri­ous warn­ing but not with a fine – a law firm in the Ca­nary Is­lands that had thrown away two rub­bish bags that were full of per­sonal doc­u­ments such as wills and deeds. An­other case was a breach in the se­cu­rity sys­tem of the health min­istry in Madrid last sum­mer that ex­posed the health data of more than 100,000 peo­ple.

An­other basic prin­ci­ple of the reg­u­la­tion is what is known as proac­tive re­spon­si­bil­ity. “The per­son re­spon­si­ble for pro­cess­ing the data must an­tic­i­pate any prob­lems that may well arise. For ex­am­ple, when de­sign­ing an ap­pli­ca­tion or a web­site, they must en­sure that the user will have to pro­vide as lit­tle per­sonal data as pos­si­ble,” says Vi­lasau.

This ex­pert on data pri­vacy also points out that tech­nol­ogy is far from neu­tral and that when the ar­chi­tec­ture of a sys­tem is de­signed, then de­ci­sions that can af­fect pri­vacy have to be made. She gives an ex­am­ple from the point of view of the pub­lic au­thor­i­ties, which have a duty to be trans­par­ent but de­pend­ing on how they build their data­bases aimed at shar­ing pub­lic in­for­ma­tion they could end up un­wit­tingly pro­vid­ing ac­cess to other sen­si­tive data that should re­main pri­vate. “When de­sign­ing these types of data­bases, it’s ex­tremely im­por­tant that the in­for­ma­tion can be par­tially ex­tracted from them,” she adds.

The thirst for data

“Many peo­ple want our data. Es­pe­cially the big tech and e-com­merce com­pa­nies, in order to pro­file us and sell us prod­ucts. But there are also other ac­tors who are in­ter­ested in our per­sonal data, such as se­cu­rity agen­cies and gov­ern­ments,” says Jordi Soria, the head of tech­nol­ogy and in­for­ma­tion se­cu­rity at the Cata­lan Data Pro­tec­tion Au­thor­ity.

In Eu­rope, the GDPR states that per­sonal data can only be processed in six cases. The first and most im­por­tant is only when the per­son in ques­tion has given his or her ex­plicit con­sent. “We’re be­com­ing more aware that our con­sent is re­quired but in this so­ci­ety we’re bom­barded with con­stant in­for­ma­tion, and so we’re sat­u­rated and we tend to click on “ac­cept” too quickly with­out stop­ping to con­sider the im­pli­ca­tions of the re­quest,” Vi­lasau points out.

There are some sit­u­a­tions in which per­sonal data can be processed with­out the ex­plicit con­sent of the in­di­vid­ual in­volved. In these cases, at least one of the fol­low­ing con­di­tions must be met: if it is to pro­tect the vital in­ter­ests of the in­di­vid­ual (such as in the event of dis­as­ters, hu­man­i­tar­ian crises or even pan­demics); if it is in the pub­lic in­ter­est (such as when re­quest­ing data from sex of­fender reg­istries when hir­ing some­one to work with chil­dren); when there is a con­trac­tual need in busi­ness, labour or ad­min­is­tra­tive re­la­tions (such as ac­cess­ing the data of an iden­tity card of a com­pany em­ployee); if it is to com­ply with legal oblig­a­tions (such as with billing data), and if it can be shown that it is in the le­git­i­mate in­ter­est of the data con­troller, or the party want­ing to process the data. This lat­ter con­di­tion is the least well de­fined and all the ex­perts in­sist that it should be stud­ied on a case-by-case basis. “It’s about find­ing the right bal­ance be­tween the in­ter­ests of the per­son af­fected and the gen­eral in­ter­est of the com­pany, the school, the foun­da­tion, or who­ever it is re­quest­ing to process the in­for­ma­tion. For ex­am­ple, in cer­tain mar­ket­ing sit­u­a­tions, if I want to process per­sonal data in order to send you ad­ver­tis­ing, the first thing to con­sider is whether the use of the data is le­git­i­mate. An­other ex­am­ple would be whether ap­pro­pri­ate mea­sures will be taken to pro­tect pri­vacy if mi­nors are in­volved. In short, the con­text of the pro­cess­ing of the per­sonal data needs to be stud­ied in order to de­ter­mine if the in­ter­est under con­sid­er­a­tion is truly le­git­i­mate,” says Vi­lasau.

All of these as­pects must be taken into ac­count by com­pa­nies, in­sti­tu­tions, ad­min­is­tra­tions and even self-em­ployed work­ers who have to process this type of data. Of course, at the same time, Eu­ro­pean law also pro­tects the rights of in­di­vid­u­als with re­gard to the use that may be made of their per­sonal in­for­ma­tion. “Data pro­tec­tion au­thor­i­ties en­sure that these rights are re­spected. Those af­fected may re­quest in­ter­ven­tion or ju­di­cial pro­tec­tion if they con­sider that their rights have not been re­spected,” adds the ex­pert.

Trans­parency key

One of the main rights is trans­parency of in­for­ma­tion: at all times the or­gan­i­sa­tions or com­pa­nies that process per­sonal data must ex­plain to those af­fected why they have it and under what con­di­tions. An­other right is to have er­ro­neous data cor­rected. For ex­am­ple, in the case of an in­surer who iden­ti­fies a cer­tain cus­tomer as a smoker when in fact they are not. Fail­ing to cor­rect in­for­ma­tion like this could be prej­u­di­cial if that per­son takes out med­ical in­sur­ance.

This ac­cess to your own per­sonal data must also be made sim­ple and must be free. “We re­ceive many in­quiries from peo­ple who want to know what per­sonal in­for­ma­tion of theirs may be cir­cu­lat­ing on the In­ter­net. But it is not us they should ask but rather the com­pa­nies to whom they have given con­sent to ac­cess and process their data,” says Soria.

In gen­eral, says the head of the Cata­lan Data Pro­tec­tion Au­thor­ity, we’re largely un­aware of the value of our per­sonal data, and also of who has it. “We click “ac­cept” with­out re­ally know­ing what we’re doing, and with­out read­ing any­thing. It’s very dif­fi­cult not to do this as it takes a lot of ef­fort to stop and re­ally con­sider what we’re con­sent­ing to with this sim­ple ges­ture,” he in­sists.

And the data pro­tec­tion head adds that it is also ex­tremely im­por­tant for us to be aware of the per­sonal ma­te­r­ial that we our­selves may make pub­lic on­line. “When­ever you post some per­sonal data on the In­ter­net, this in­for­ma­tion is very often not lim­ited just to the place where you posted it. This means that we have to be aware not only of the au­tho­ri­sa­tions con­cern­ing data that we give oth­ers, but we also have to think twice be­fore post­ing any­thing our­selves on so­cial media. Once it’s on the in­ter­net, you no longer con­trol where it might end up,” con­cludes Vi­lasau.

fea­ture on­line pri­vacy

fea­ture on­line pri­vacy

Pandemic thermometers and health information

The pandemic raised a number of doubts regarding the processing of health data, a type of personal information that is considered especially sensitive. It was clear from the outset that, according to the regulations, data protection could not be used as an argument for “obstructing or limiting the effectiveness of the measures adopted by the authorities, especially the health authorities, in the fight against the pandemic,” as the Spanish Data Protection Agency (AEPD) stated at the time. Thus, measures such as the Covid passport have had all the necessary legal protection to be able to be implemented

A separate issue, however, was the taking of temperature when people were accessing establishments and services once the lockdown was over. First, there was some debate about whether or not temperature-related information should be considered personal data. The AEPD considered that it should be, that body temperature is data in itself that obviously allows us to know if a person is ill or not. Then there was the issue of checking temperatures in a public space, with the risk that third parties could unjustifiably obtain this information. Questions like these meant that following the lockdown, with thermometer guns proliferating everywhere, the health authorities were asked to establish clear criteria. In the end, the authorities said that it was in the general interest to ensure the preservation of public health and that if the temperature was simply taken without collecting the data, then no rights were being violated. In the case of workplaces or schools, it was also considered necessary to take people’s temperatures as a safety measure for the whole group, as long as the official health recommendations were followed and the data was not used for any other purpose.

Health data are considered a special category in European regulations, and have special protection. As an example, at the end of last year, the 2007 Catalan law on social services had to be amended to make it possible for social services and health services to share information from people cared for in both areas, in order to improve their integrated care.

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